Yes, I haven’t posted for a couple months and no, I don’t mind. Being able to simply survive during a pandemic is a success in it’s own right, let alone being able to survive with CRPS in a pandemic. I am also a student and uh, did you know I have CRPS? Ugh. Okay but…Read More Wearing a mask is the least you can do.
As the world is starting to open back up and people are going out more and more for nonessential reasons, I have been trying to understand why I am reliving some traumatic feelings from seemingly out of nowhere. I think I figured it out today. I know when my body is in pain, and after…Read More Why am I reliving medical gaslighting right now?
Listen to your chronically ill friends and family right now. We are experts in this field. We know what’s up. It looks like we are headed towards many more people needing to isolate themselves at home, for an undetermined amount of time. Many of us chronically ill folks have needed to live this way for…Read More How To Emotionally Manage Your Social Isolation
I started a hashtag on twitter yesterday. There were many of us sharing stories. I was talking about how it feels as a disabled person to see so many accommodations being made to the public in response to coronavirus, when a lot of those same accommodations “could not” be made in the past despite the…Read More What is #AccessibilityForAbleds and why does it matter?
What makes a disability “invisible”? It is as straightforward as it sounds – if you can’t actually notice someone’s disability right away, it is invisible. Many chronic pain patients are considered to have invisible disabilities. Unless you have something signalling to the outside world that you have a disability, like a guide dog or hearing…Read More What makes a disability “invisible”?
Chronic illness and pain life can be hard, friends. I’ve had some serious ups and downs since developing illness. How long did it take you to find other chronic pain people ? I tried to start a chronic pain support group in my community but that didn’t last. Eventually I figured out that all the…Read More Welcome to the site! Let me tell you why I’m here.